Update History
Syndrome: Acute Intermittent Porphyria
Gene/Gene Panel: HMBS
Genboree Administrator Account
2018/11/01
Released
Hepatocellular carcinoma
Liver US surveillance
10CC
Morbidity of acute attacks
Optimal treatment (Hemin) in the event of an attack
10CB
Neurovisceral attacks
Optimal clinical management to reduce risk of attacks (e.g., avoidance of harmful medications, dietary advice, treatment of infections, avoidance of smoking/alcohol)
9CB
Internal system migration related to score text replacement from E to N
Elizabeth Clarke
2018/02/15
Released
Hepatocellular carcinoma
Liver US surveillance
10CC
Morbidity of acute attacks
Optimal treatment (Hemin) in the event of an attack
10CB
Neurovisceral attacks
Optimal clinical management to reduce risk of attacks (e.g., avoidance of harmful medications, dietary advice, treatment of infections, avoidance of smoking/alcohol)
9CB
Kathleen Mittendorf
2018/01/11
Released
Hepatocellular carcinoma
Liver US surveillance
10CC
Morbidity of acute attacks
Optimal treatment (Hemin) in the event of an attack
10CB
Neurovisceral attacks
Optimal clinical management to reduce risk of attacks (e.g., avoidance of harmful medications, dietary advice, treatment of infections, avoidance of smoking/alcohol)
9CB
Elizabeth Clarke
2017/10/23
Released
Hepatocellular carcinoma
Liver US surveillance
10CC
Morbidity of acute attacks
Optimal treatment (Hemin) in the event of an attack
10CB
Neurovisceral attacks
Optimal clinical management to reduce risk of attacks (e.g., avoidance of harmful medications, dietary advice, treatment of infections, avoidance of smoking/alcohol)
9CB